Journey Beyond Survival

Bad news. The happy Nutritionist came on Wednesday. She likes that I feed Chickadee ground up things like broccoli and poached eggs. She is my favorite personal cheerleader. But. Chickadee lost weight. How ironic that this is bad in my life. Chickadee also grew. For the second month in a row. She is two pounds down and one centimeter up. This is the cause for my missed runs and funky 'tude. She's going to need a GI pediatric specialist. They need to do a study of her digestion. I don't want to do this-add another doctor-again Pray if that is what you do. Think happy for us if you remember. *photo by Sighlent J*

Hospice says Hubbend's Dad has 6-8 weeks left. Now I suppose I'm in denial because I don't really feel anything about it. I'm hurting for Hubbend though. He calls his dad and vents for a couple of hours sometimes. They debate really loudly over stupid stuff, and argue loudly from the same side of the same answer. It's family bondage time that they really really love. Hubbend is devastated. And lost. Angry at the world for 5 minutes, then Love 'em While You've Got 'em the next. We will be going down there the first week of April. I don't know that it will be soon enough, or if the kids are going to be just too much for someone in pain and waning. I'm supposed to make him a memory book. I'm floundering for things to say because I'm a void. My little sister-the one that THIS happened to-had a miscarriage last week. And I just don't know how much more loss can happen in one little circle. *photo credit*

regression I BEFORE pulled up to stand walked with walker turned while walking with walker fed herself with both hands pincer grasp both hands ate dirt ate hair ate sand like it was sugar ate all table foods 15 words spoken 15-20 sign language words crawl up and down 20 stairs AFTER no fine motor skills in hands compulsive movements with hands (touch hair slap downward) 2 sign language word adaptations all liquids thickened to 'nectar' consistency all solids ground to stage three baby food consistency crawl two stairs up not down at all walked with two hands held cruised along furniture 4 oz maximum tummy capacity feeding 9 times a day 1 1/2 hours apart while awake regression II BEFORE crawled thirty feet walked to fatigue two hands held loved whole milk 1/4 tsp laxative in her nectar thick liquids had thunder thighs cruised furniture in both directions with incentive (insert evil Jillian laugh) ate from 1/2 cup to 3/4 cup ground up table foo...