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Lost Pieces


regression I

BEFORE
  • pulled up to stand
  • walked with walker
  • turned while walking with walker
  • fed herself with both hands
  • pincer grasp both hands
  • ate dirt
  • ate hair
  • ate sand like it was sugar
  • ate all table foods
  • 15 words spoken
  • 15-20 sign language words
  • crawl up and down 20 stairs
AFTER
  • no fine motor skills in hands
  • compulsive movements with hands (touch hair slap downward)
  • 2 sign language word adaptations
  • all liquids thickened to 'nectar' consistency
  • all solids ground to stage three baby food consistency
  • crawl two stairs up not down at all
  • walked with two hands held
  • cruised along furniture
  • 4 oz maximum tummy capacity
  • feeding 9 times a day 1 1/2 hours apart while awake
regression II

BEFORE
  • crawled thirty feet
  • walked to fatigue two hands held
  • loved whole milk
  • 1/4 tsp laxative in her nectar thick liquids
  • had thunder thighs
  • cruised furniture in both directions with incentive (insert evil Jillian laugh)
  • ate from 1/2 cup to 3/4 cup ground up table food for meals
  • got whatever toy she wanted
AFTER
  • no crawling
  • difficulty standing (feet placement needs physical/auditory prompt)
  • lost 5 pounds
  • reflux started breaking through the HIGH dose of medicine
  • constipation excites an anxiety attack (diagnosed by mom only)
  • three additional medicines prescribed to deal with constipation
  • lactose intolerant
  • supplemental soy formula drink started
  • back on the weight gain train
  • if she doesn't improve she will be admitted to hospital
  • they are talking about slow motility
  • they are talking about a g-tube
  • is moving rapidly toward non-mobile
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Comments

  1. TitanThirteenApril 23, 2010 at 7:55 PM

    [[HUG]] :o/

    ReplyDelete
  2. AnonymousJanuary 9, 2011 at 10:09 AM

    So sorry to hear this news. I imagine it must be very difficult. I have been spreading word of Chickadee's therapy dog via facebook and twitter. I wish you good luck and my prayers are with your family.

    ReplyDelete

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