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Sometimes it's Lonely and Sad

Army Photography Contest - 2007 - FMWRC - Arts and Crafts - Son in the Tub


One more day of finishing up the 48 hour test. It takes forever doesn't it?

Trust me. You don't want to talk to me right now. I've spent two days scrounging up food, neglecting hygiene, and sleeping on a jack knife sofa covered in plastic.

Plus, I'm pre-posting this anyway.

If I know me, I will be nervous right now. At 9:00 AM I will troop away from the VEEG center. Chickadee will have a combination of Dental cleansing paste mixed in with paper mache glue and a bit of "conditioner" that the techs try to help things out with. It usually sticks up like a good Southern bouffant, but since we're going for double the hours we might get up to a beehive quality pouf.

Hopefully on Monday, I'll feel like typing about the results.

I'm not so sure from this end of the tunnel.

Please pray for me. That we can handle the seizure meds if she's having seizures, and that the neurologist will listen to me and keep her off them if she's not.

My Chickadee just drowns in that medication. I don't want to see her bobbing again, but I don't want the seizures to tear her brain either.

Thinking of you.

xo

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Comments

  1. MizFitMay 27, 2011 at 5:34 AM

    nothing but hugs, Sister.

    nothing but hugs.

    ReplyDelete
  2. LaurieMay 27, 2011 at 6:56 AM

    hope things are ok, thinking about you.

    ReplyDelete
  3. HS @ Our Debt BlogMay 27, 2011 at 9:06 AM

    My thoughts and prayers are with you this morning, good luck..

    HS

    ReplyDelete
  4. JaeMay 27, 2011 at 4:30 PM

    My heart hurts with you.
    Praying for the bestest outcome.
    Wish I could just sit in the waiting room
    Praying you feel all of us who love you and Chickadelicious.

    ReplyDelete
  5. Christie FarrarMay 27, 2011 at 9:47 PM

    praying for you like you wouldn't believe

    ReplyDelete
  6. Yum YuckyMay 28, 2011 at 12:38 AM

    la-la-la-la-laaaaaa! You've got some happy results typing to do ((waiting...waiting)). With more wagon-riding footage, maybe? You this time, you in the wagon. ;)

    ReplyDelete
  7. BossyMay 28, 2011 at 4:24 AM

    Seizure medication scares me but seizures scare me more. My oldest started having seizures in 2008, at 38 months. Within a month he lost milestones, it was like he was an infant again. He couldn't feed himself, dress, and worse he lost his speech. It took me nine months to convince his neurologist his seizure were not under control with the medication and all it was doing was causing terrible side effects (That isn't very fair, it did stop the grand mal seizures). Finally we had our overnight EEG. They canceled the EEG early. The eight hours he was hooked up he averaged 250 "micro seizures" an hour! But at least we had an answer to the burning question.

    Whatever your results know that this too shall pass and kids are so resilient. I know exactly what you mean by drowning in medication. Stay informed and always seek alternatives to medications that have terrible side effects. I'd love to discuss what we learned about different medications if you want to email me. I think we tried every medication safely approved for small children and then some trying to control my little guy's seizures.

    Kira

    ReplyDelete
  8. Anne HMay 28, 2011 at 10:55 AM

    Thinking of you!

    ReplyDelete
  9. Tami@NutmegNotebookMay 28, 2011 at 11:32 AM

    That is a lot to deal with but you always seem to do it with humor and grace.

    Prayers and cyber hugs!

    ReplyDelete

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journey . beyond . survival at gmail . com
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