Today I'm going to Big City. Three and a half hours away. We do it in a day, all the time.
The plan is that I will do C25K week two day three. Before I go.
Hopefully, I will take very very good care of me. I've packed healthy food for me, and six bottles of her drink that costs an arm and a leg. We'll head out with the other kids as they catch the bus at 7:05 AM. After waving, we'll head on our way.
Then we will spend the entire day taking care of her. We'll talk to them about how her eating skills are deteriorating. How she can't keep down but 75% of her drinks and won't eat solid foods hardly at all anymore. We'll weigh her in. We'll deal with the panic of the doctors. Hopefully she won't be hospitalized. It's probably a 15-20% chance that she will. They will tell me something that will inevitably make me cry on the drive home.
It will suck.
But then, I will also get to tell them. I will use it like dollops of whipped cream on sour cherries. That she said NO out loud Thursday. And "D" while patting her diaper. That she is doing the potty sign again after two years! And that she did it for three days in a row.
We will talk about preschool. And how for picture day, Miss THANG came flouncing in convinced of her beauty. She talked excitedly to Chickadee about picture day, and how Chickadee gets to go to school again even though it's not her normal day. She asked her little sister if she wanted her hair curled like hers. Chickadee beamed like she'd worn her first princess crown. Miss THANG asked if she wanted to wear her pretty pink Sunday dress. Her little body wriggled with excitement and anticipation as she looked over at me.
I'd never even thought to ask her that. I'm so glad she has a sister.
And Beansprout. He careens her wheelchair like no one else, and she lights up for him in a way she doesn't for anybody else. They are pals for life.
We love her so much it hurts.
*photo from HERE but edited by me to show Chickadee's area** of difficulty*
**her area of difficulty is the weak muscles in her tongue, and most especially the flap that closes off the lungs from food and liquids**
How lucky your kids are to have each other like that:) Drive safe.
ReplyDeleteI'm praying hard for you today. ((HUGS))
ReplyDeleteOh yes, the part where you "get to tell them" is awesome to read about!!! I'm with you girl (invisibly) as you ride the trip up and back). And so glad shared on Chickadee's area of difficulty. Now I know how to better pray. Yes, I am one of those beautiful "fools" that believes God hears my prayers... (and He hears yours, too).
ReplyDeleteI never wanted siblings. Mum asked me a few times (not that she wanted a second kid, didn't wanna feel selfish in case I wanted one) I didn't even have to think about it. I just didn't want sisters, brothers or inbetweeners. My boyfriend wants two kids... big deal to me. Then again I get to hear about sibling stories like your kids and I think... I might work. (May be I need someone to give birth the second child, then I would have less objections)
ReplyDeleteGood luck to you my friend. I am also joining the prayer group of your readers for both of you ♥