Skip to main content

Possibilities Not Just Dreams



Now, I don't know about you all, but I don't know many millionaires. I hate to be hitting up people I love for money, I know that most of them are struggling just as much as I am to make ends meet and provide a future for their families and retirement. I get that. But, I am perfectly willing to shamelessly use my friends for VOTEs. Shameless.

Did you know that the International Rett Syndrome Foundation has a small window of opportunity to double their money? That's because the Pioneer Fund of Colorado gave the IRSF a grant of $1 million dollars to be awarded when the foundation has matched that amount in fundraising.

This is why I'm willing to be shameless. Especially when it comes to $250,000 for getting the most VOTEs. So, please feel free to sign up for the DAILY EMAIL REMINDER and return to vote every day until the end of June.

You know I'm persistent. You know I'm consistent. You know I will drive you just as crazy as I am until you do. EverySingleDay. Every single one. I will.

You know it.

Please? VOTE

If you are a fact checker-which I applaud-here are your sources:
Wikipedia Synopsis including research developments

Or on the identification of the genetic mutation (one hour long):
    Huda Y. Zoghbi, Howard Huches Medical Institute investigator and professor at the Baylor College of Medicine
    1. At minute 36 the link to some types of mental retardation, balance problems, bipolar
    2. At minute 49:30 how Rett Syndrome Research can help with Autism, Seizures, Mental Retardation and many other disorders and diseases. Identifying the location of the gene expressions for Rett Syndrome symptoms will be of infinite worth to the other conditions.

Finally on the potential of finding a Reversal for Rett Syndrome:
Brain is Poised to Improve

Comments

Post a Comment

I reply to comments in email. Email me at

journey . beyond . survival at gmail . com
if you'd like me to reply.

Popular posts from this blog

I Found True Happiness

It feels like I've become a detached voice, writing but not feeling on this blog.  I'm living a lot of things that don't fit neatly into my bloggable ownership file. Even now, I've spent an hour with this tab open to write a new post and I've done absolutely everything else possible.  For once I can't put a finger on what I'm feeling.  I don't fit into any definable box. On one hand, I'm spending an hour in therapy with Chickadee and another hour round trip three times a week. Mr. Survival is fighting off unemployment blues. We cannot shake things up and have me go to work. I'm not going to go to FitBloggin'11 . But, on the other hand, Chickadee is STANDING in the stander for minutes instead of seconds! Chickadee is grasping things momentarily for the first time in eighteen months. I'm so in love with Mr. Survival it's unbelievable. We are tighter as a family than we ever have been. I'm stressed and frustrated.  I...

Don't Make Me Say It

Okay. Deep breath. Again. Okay. So . . . I hate to alarm you, but I have a rather prolonged problem over here.  At least two years in the making I would say.  I've seen two doctors, and used four or five over the counter remedies.  Sounds like  a problem, right? But, it goes back even farther than that.  At the ripe age of fifteen years old, I had a septic hip , which is basically a staph infection that invades a joint.  In other words, it declares nuclear warfare and plays for keeps.  If they hadn't operated immediately I would have lost my hip joint within a couple of days. As you can imagine they blasted me with the full arsenal of antibiotics. They left the incision open for 4 days in order to be able to administer antibiotics directly to the joint.  I know, I know.  GROSS.  Sorry, I just find myself repeating the gory details like a labor and delivery story.  Or a combat tale. Anyway, I found myself after this wi...

We Did It!

We raised $5597 at FirstGiving.com We raised $25 on Facebook with Paypal Ryan and Deb raised $1000 for a new website . And? That puts us over the top! Even when we factor in any fees that Paypal, Firstgiving, or Ryan incur due to credit card use fees, we are over. So. What does that mean? We are on our way! At Midwest Assistance Dogs, they are excited about training a dog for Chickadee. It's a unique situation that has never been done before, so I appreciate all of you being supportive and open minded about it. We are still discovering the ways that Chickadee can be benefited by her Service Dog. So, I'm working with the director. He is reviewing our life, and bouncing ideas off me as to what will work. What does that mean? I don't have a specific doggie, or date yet. It depends on what is realistic for the dog to learn, and for Chickadee/I to be able to help it execute. Basically it's gonna take time, research and experimentation. Usually? i...