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GUESS WHAT?

You know how I said that Chickadee had to go to a pediatric dentist? And how she had to be put under just to have her teeth cleaned and cavities filled? I can't believe this. Chickadee already got it done!!! Yup. They just had me hold her hands down, and they got her done. Fantastic. That totally makes up for the two trains and traffic that made me fifteen minutes late in spite of planning to be half an hour early. It also makes up for being an hour longer on the way home because we got out of there at rush hour. No contest. But guess what else happened? Our primary insurance doesn't pay for dental. We got pre-approved for the visit early. From the Pediatric Special Needs Health Care. (I don't know if it's Medicare or Medicaid I get mixed up) I had to call/argue/persist for forty-five minutes to get seen. But GUESS WHAT!?! I did it! I didn't back down. I didn't cry. Not even once. Not even when Chickadee was yelling at me becaus...
Recent posts

On the Road ... Again

I'm bursting with things to write about, but today cannot be that day.  I have to drive right back down to that hospital for another appointment.  Thankfully it is only for a one hour appointment.  I'll just drive seven hours to do it. Chickadee is meeting with a pediatric dentist that can deal with her inability to swallow water or other thin things, like dental paste or fluoride rinse.  She also has repetitive hand movements that could pose a tiny problem, even for the most practiced dentists.  So Chickadee must get cleaned and/or patched up under general anesthesia.  This appointment is to get the ball rolling and become a patient. I'm also hoping that we can get in her physical therapy appointment, but it all depends on what time the dental appointment really is.  Because I have it on my phone, but in a really weird 'new' format.  More efficient.  HA. More like confusing. Please, tell me all about your Memorial Day!  I fig...

Tips

You know you've been at the hospital when you clog the toilet when you come home. You know you've been at the hospital when you're glad for the free food, even the stuff in the lounge. You know you've been at the hospital when you realize how much you pay in premiums and that none of that food was free. You know it's been a good trip to the hospital when you're excited to make the call to grandmas and friends and loved ones. You know it's been a good trip to the hospital when your husband rides the goodwill wagon through the parking garage. You know it's been a good trip to the hospital when all you have to do is a general anesthetic MRI. You know you've been to the hospital a little too often when that is good news! photo credit
It went fabulous. No meds, no doctor wanting meds. Dr. just wants us to have an MRI later this summer. Thanks for thinking of us. Sent from my iFrenzied life P.S. Wahooooooo!

Sometimes it's Lonely and Sad

One more day of finishing up the 48 hour test. It takes forever doesn't it? Trust me. You don't want to talk to me right now. I've spent two days scrounging up food, neglecting hygiene, and sleeping on a jack knife sofa covered in plastic. Plus, I'm pre-posting this anyway. If I know me, I will be nervous right now. At 9:00 AM I will troop away from the VEEG center. Chickadee will have a combination of Dental cleansing paste mixed in with paper mache glue and a bit of "conditioner" that the techs try to help things out with. It usually sticks up like a good Southern bouffant, but since we're going for double the hours we might get up to a beehive quality pouf. Hopefully on Monday, I'll feel like typing about the results. I'm not so sure from this end of the tunnel. Please pray for me. That we can handle the seizure meds if she's having seizures, and that the neurologist will listen to me and keep her off them if she's n...

Coming Up With Something

I prescheduled this post since I'm still at the hospital... I can dream about this garden, can't I? We've been working hard. In the morning before the kids wake up, and after dinner. My kids have even been helping. I know. They must be host bodies for parasitic aliens. It's the only explanation I've got. Miss wants flowers for the lemonade stand she mans every year. Mr. Survival wants to save money. I tend to buy a lot of expensive produce. I don't buy junk food. Lately though, he's been finding convenient excuses to  "swing by the store"  and my house has junk food again. So, I am no longer saving money by buying expensive produce. Hehehe. I'm nasty and I just like to play in the dirt.   Beansprout? He's what my brain should be.   Six. We like to play in the dirt and watch what comes up. photo 1 credit photo 2 credit photo 3 credit photo 4 credit

Videography

Chickadee has a test today. I've seen a few new 'episodes' of staring which aren't like the others. She's more vacant during them. She's not staring at something shiny or otherwise distracting. That means calling the neurologist. Which means VEEG . With the electrodes on for 48 hours this time. While she always has an abnormal EEG, Chickadee has never had seizures. But, Rett Syndrome has a very high risk for them. All Rett children have an abnormal EEG by 4 years old. But, 60% or more have seizures by age six. So, it's kind of a big deal, but I've been trying not to think about it. In order to further distract myself, Please give me ideas on how to choreograph a dance. To make the technicians laugh. video credit